Well compared to where I am now, the last hospital was like club med! I got moved to a rehab in Livermore last night. As they wheeled me thur the basement dirty water from dry rotted old ceiling dropped onto my face as the lights flickered on and off. Straight out of a horror movie. Not a good first impression...fortunately the third floor is a bit brighter than the basement... an antique straight out of the 50's which I would love in any other circumstance but for my health care. They did give me my own room which was newly painted 12 hours before I got there so at least I've been getting high on the paint fumes. So far time here has been quite difficult. The care has been very unknowledgeable about SCI and even about simple routine procedures. Most don't speak english or pretend not too. I have to fight the nurses for everything. Some doctor that has never met me wrote a perscription that they are only to let me to pee every 8 hours! I've been screaming all morning to meet this doctor to get him to change the order. I would like to know if he waits 8 hours inbetween peeing! So not in very good spirits right now.
Wish I had some boxing gloves!!
On a more positive note.... I have been getting up in a wheelchair for the last 3 days. I'm only able to sit up for about a half an hour at a time before I feel like I have to vomit but it's something. And everyday it gets a bit better and longer. They took the steri strips off my back but still have the incision all taped up. It ended up being about a 10" incision right down the center and then another one lower down about 3". Still pretty painful especially transferring but getting better everyday too. Can't wait to be all healed up and back at it!
My mother got to me on Friday, really good to have family here and someone cheering on my team. She has been so patient and understanding with me as always. I'm lucky! Been having lots of visitors which has been keeping my spirits high and reminding me that there is reason to push forward. Thanks all for making the trip!
So my new location is: 1111 E Stanley Blvd, Livermore, CA 94550. In room 301. Land line is: 925.373.4060 that will connect you to the nurse station and they can send you to the room. My cell works too. They keep me pretty busy so don't be upset if I don't get back right awayl
Still trying to get moved to rehab in Valley Medical in San Jose since they have a whole wing dedicated to spinal cord injury but they would not take me because of my pressure sore which has gotten quite bit worse since being under the hospital's care (???).
Well that is about it for now. That should bring everyone up to date. Thanks again for all the support! I've been reading everything and it helps for sure! Lots of love and hugs!
xo,
char
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I can commiserate, Been in and out of Hospitals for the last 9 years for this and that. Please keep your spirits up and do not let them off the hook for anything. You are your Best Advcate and dont forget that.if you are not up to that perhaps you can get family to advocate for you. You have a right to see the attending and if he doesnt appear perhaps a call to the Hospital administrator could add some fuel to the fire. Chin Up !
ReplyDeleteLife happens when you are making up your mind. Char... I am sorry you had to go through all this. again and again. I hate it for you.
ReplyDeleteI hope you can move to a better facility soon. Where you are now... sounds completely lame. And I hear ya... about how the system and health care is getting weirder. I hate knowing that.
We are here for you in other ways... when you need us. I again, had the lucky opp to hug and pet and talk to Burton today. He seems to seek me out now and then at the museum. I tell him you are ok.. and you miss him , and will BE BACK. He listens to me.
Also Bella is good for him... as is.. J and J.
love you.. and I am freakin sorry we didn't get that damn sore healed last Spring. WE all tried hard! so... let's do it this time.
LOVE YOU and am here in the foothills/Sierra to help when you get back. Hope the hell of Livermore moves on soon. YOU SO DESERVE BETTA.