Char is facing the largest challenge of her life aside from her initial
Spinal Cord Injury in 2000. Her spine needs to be rebuilt and she needs
our help.
The last several years Char has been battling endless
complications from an unsuccessful rod extension surgery she received in
2010. Hardware that was installed from the failed surgery has
accelerated the deterioration her lower vertebra (L-4, L-5) causing
severe scoliosis and the pelvis to act detached from the spine.
Recently, the misplaced hardware that was installed has been rubbing
against her pelvis bone causing irreversible damage and creating large
pockets of fluid. These pockets of fluid have migrated up around her
back and into her lower spine. They are extremely large and
uncomfortable causing severe complications that are restricting Char to
mostly bed rest. The doctors tried draining out the fluid from Char's
hip to provide some relief until the surgery. Much of the fluid could
not be removed because of the placement and some of the fluid has come
back since it was drained.
UCSF has scheduled Char for the first
of two emergency spinal reconstructive surgeries on December 28th with
Dr. Sig Berven. The second surgery will be about 6 months after the
first. Both surgeries will be a brutal, long complicated surgeries with
extensive hospital stays spanning at least two years of recovery and
rehabilitation. In the first surgery, they will go in through the back
and will take out the old hardware (T-4 to L-3), then remove pieces of
her spine in order to get it to align straight again and then reinstall
all new hardware that will fuse her spine to her pelvis. Then the second
surgery, they will go in through the front. They will install a cage
into the hole left from the disintegrated bones, clean out the
calcification in Char's hips and spine from the hematomas and loculated
fluid pockets. And also tweak the hardware from the first surgery if
need be. A successful surgery will allow Char’s health to eventually
stabilize but it also comes with a great cost. The doctors are
predicting she will lose more mobility and independence due to the
fusion, and it will have an impact on her day to day life as she knows
it. Her family members will be flying out during and after the surgery
in shifts to provide support for as long as they can.
The
financial burden this has had and will have on Char and her family is
quite significant. Being mostly bound to her bed right now, Char is not
able to work much at this time. She has a person coming to her apartment
to help her. With limited income, she is in need of our love and
support to get her through. Please chip in as you can. Let's all help
Char to rise and conquer this enormous challenge she is facing! Let's
get her up-right!
The money that is raised will go towards
medical expenses including: keeping Char's head above water, assistance
in the home, medical bills, a new custom cushion and back for Char’s
wheelchair, large durable medical equipment that will be needed, travel,
lodging and all the other things that will pop up along the way.
Thank You,
Nancy Page, Friends, Family & Char
10.28.2016
10.21.2016
Celebrating With Tea
Celebratory tea!! Spinal column is perfectly in tact, no fluid is leaking out!! So relieved!! I'm so grateful for all the positive energy that is being sent my way. It's such an important part of me getting thru this huge challenge in front of me. So now I'm back to waiting for the doctors to come up with a plan to hopefully drain out the fluid pocket next week since it's possible now! Then surgery on Dec 15th.
10.17.2016
Change of Pace
Well, my upswing has changed its pace along with its face. I guess the hardware from Dr. Grant’s bad surgery mixed with my active lifestyle has deteriorated my lower spine so much in the last 5 years that my pelvis has detached from my spine. My pelvis bone has been rubbing on the hardware when I sit and move around causing bone damage and my body reacted by creating a large pocket of fluid that has migrated all the way up around my back and into my lower spine. The doctors are concerned that the dura that holds the spinal fluid potentially burst so they are refusing to drain the fluid because if burst, it could suck out the rest of the spinal fluid. I’m going to UCSF on Wednesday for a CT scan with dye injected into the dura in the spine to check to see if it’s whole. Then they can determine if they can drain the fluid for relief and what the next steps will be. Thoughts, visions and prayers for an intact spinal column would be greatly appreciated! Spine reconstruction surgery scheduled for December 15th at UCSF.
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